If you’re not aware of Palliative Care nurses, here’s a wonderful example from a blogging friend of mine what they can do for you. The whole you.
Have you ever felt stranded? Sick …Painfully so…But did not know who to call. Maybe too sick to figure it out.
This happens a lot to those of us with autoimmune disorders. I am seeing many doctors, each a specialist who oversees a section of my body. For me, I have a rheumatologist, an oncologist, an endocrinologist, an ENT Doc, an internist and a podiatrist. However, there is no one who looks at the total me.
This week I am in trouble. Things just are not working well enough. The protocols that are to be followed when I am in trouble are not working. What do you do when your painful issue does not fall into the neat little slot of a specialty? When you are plainly worried that all is going to hell? Who do you call? Unfortunately, not GHOSTBUSTERS.
Here’s what I did. Then I will tell…
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