Tags
a nurse's story of living with her husband's terminal diagnois, Atul Gawande's Being Mortal, living with uncertainty, Marv Taking Charge: A Story of Bold Love and Courage, patient autonomy, saying no to chemo, small cell lung cancer

Finally, Marv Taking Charge: A Story of Bold Love and Courage will become a reality! I hope to have books in hand by mid to late April.
An introduction: Lois Roelofs always knew that Marv, her husband of fifty-five years, had strong convictions. So when he was diagnosed with “very aggressive” small cell lung cancer, with a few weeks to a few months to live, she accepted that he wanted to die on his own terms―refuse chemo, choose quality of life over quantity, and die at home. She tells their story in a mix of personal notes, family and friend emails, and public blog posts written during Marv’s illness and her first months as a widow. At the time, she could find no personal accounts of refusing treatment and living with the resultant uncertainty.
I started writing those “personal notes” when Marv was diagnosed in January of 2018, long before I knew I would write a book someday about our experience. Now, over five years later and after years of writing, working with editors, and finalizing details with the publisher (Deep River), I feel as though I’ll be having a graduation of sorts. No cap and gown, but gratifying to say I’ve accomplished what Marv eventually wanted me to do–to write our story because he felt strongly that it may help others some day.
More news about how to get your copy later!
Just
LikeLike
I’m looking forward to getting a copy of the book Lois. I don’t know how I found you originally but I travelled with you during the months of this illness and I feel as if I knew him
LikeLiked by 1 person
Sounds good, Judith.
LikeLike
Exciting to see your book almost ready to go! Its hard to believe its been 5 years since Marv’s diagnosis. I’m really discovering yet again the Covid time warp.
LikeLiked by 1 person
That is so true. I’m glad
my husband did not have to live through that. He was not one to be confined!
LikeLiked by 1 person
Yes, it might have been challenging. My dad’s replaced aortic valve failed right at the beginning of covid, and it some ways it was a relief because getting him to comply with the rules of his independent senior living complex would have been an enormous challenge. Strange benefits.
LikeLiked by 1 person
I can relate!
LikeLike
Congratulations! The book is here. I love the story behind this and your ability to take this experience and share it with others, which at times must have been painful as well. Well done!
LikeLike
Thank you, Andrea. It was painful but also cathartic!
LikeLike
How wonderful.
LikeLike